From the first moment I looked into his sweet face, while I held a tiny hand that was so small it was translucent, a body that was not much larger than my hand, I told my Superman that as long as he could fight I would fight for him. For a child that was never supposed to make it a week much less out of the hospital, those were very brave words in the first hours. But I could feel a determination in him. We knew the damage was extensive, so I knew eventually we would have to try drastic measures. To give him a chance, a better chance.
So after much soul searching, research, and prayer – we found our drastic measure that shows the most hope and chance.
We applied to the Stem Cell Institute located in Panama City, Panama. We received an acceptance letter! I have seen miracles happen from the treatments received there.
Photo credit: Wikipedia
As much as a parent wants to believe things can be completely healed, in Superman’s case, we know that is not the case. Cerebral Palsy is a condition, not a disease so there is technically not a cure, but progress can bring you out of the condition. Any progress for him can open the doors to so much more. I have seen seizures slow to almost nothing or even completely stop altogether. Vision improvement that allows the child to see enough to be able to make gross and fine motor skill improvements.
Babies learn to smile by watching others smile at them. Mimicking. Of course, that is not to say that blind people cannot learn to smile, however it happens more gradually than a typical developing baby. By increasing his chances of vision, by improving his cortical vision impairment, we have the chance to see him smile at us. At his sister. That seems so small, I know. In our world it’s everything. If he can see a toy, he might try to grab it. If he can see the handles on his sippy cup he might reach to hold it. If he can see the dog two feet from him, he might crawl to pet it.
We believe that stem cells can open the doors to a whole new life for him. As I promised him in that tiny isolette that as long as he can fight, I will fight.
So today we are asking all of you to pray for us, and help if you can to fight for Superman. He might not be able to leap tall buildings in a single bound… but one day he will take that first step and try. I have faith.
DISCLAIMER: I know SCT is controversial at best – just know that these are NOT embryonic stem cells but umbilical cord cells from carefully screened umbilical cord donations.
We will be doing several fundraisers over the coming months – we need to raise $20000 by August 1, 2013. We are just hoping you will all help us promote them, and pray that we can meet our goal and get him to Panama! I will have an events list once I figure out how to set it up in WordPress.
If you are interested in reading about other kids who have done Stem Cell Therapy – you can check out the following blogs and Facebook pages!
I will add more as I become aware of more children that have done Stem Cell Therapy.